Usher syndrome
Definition: Form of deafblindness where people are born deaf or hard of hearing and start to lose their sight (with retinitis pigmentosa) in the school years.
Category: eye condition
Credit: Sense
Source:
http://www.sense.org.uk/what_is_deafblindness/types_deafblindness/usher_syndrome/
Services mentioning Usher syndrome
The Sense
Usher Service specialises in the field of Usher syndrome and supports people with Usher, their families and professionals. Support covers
advice,
assessments,
training, mentoring and professional support.
It may be helpful to find some professional support to help you talk through the impacts of
Usher syndrome on you emotionally and physically, but if you need just to chat with another parent who has been there before and can share their experiences with you, you can contact us.
