Description: Provides support for those affected by Alström Syndrome, their carers and professionals working with them. This includes a forum, help with gaining access to medical assessments with doctors who have expertise in Alström Syndrome, quarterly medical screening clinics and a newsletter.

Email: via website

Telephone: see individual numbers on site

Weblink: http://www.alstrom.org.uk/family-support/

Type: Support Group

Coverage: UK-wide

Provider: Alstrom Syndrome UK