The Dystonia Society
Description: The Society was established to promote the welfare of people who are affected by any form of the neurological movement disorder known as dystonia. The Society aims to do this by promoting awareness of the disorder, by supporting research and by undertaking welfare initiatives. It does this on a national level and through its network of local support groups.
Weblink: http://www.dystonia.org.uk/
Tel: 0845 458 6211
Email: via website
Category: Third/voluntary Sector
Services Provided
The telephone
Helpline is available Monday to Friday from 10:00 to 16:00 to deal with questions about
dystonia from both members and non-members, and from healthcare professionals. Helpline staff are not medically qualified and that the Helpline cannot offer
advice about an individual's treatment or provide any type of diagnosis. The service can however provide support and information on many aspects of dystonia and its management
An on-line forum where people can discuss any aspect of
dystonia.
