Wales Council of the Blind

Marfan Trust

Description: The Marfan Trust supports those with Marfan syndrome and their families; provides educational information to raise awareness of Marfan syndrome; undertakes medical research to enable better treatment for patients.

Weblink: http://www.marfantrust.org

Tel: 0333 011 5256

Email: info@marfantrust.org

Category: Third/voluntary Sector

Services Provided

Marfan Trust

Provides information and a range of literature about Marfan syndrome. Members are also invited to various events organised by the association. There is a range of membership options. The basic 'Friends Membership' (which gives access to the helpline, all online & social media resources & all standard e-news articles), is free.
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