Marfan Association UK
Description: The association aims to support people with Marfan syndrome and their families, educate individuals and professionals about the condition, and facilitate research by undertaking, sponsoring, and participating in, national research projects.
Weblink: http://www.marfan-association.org.uk/
Tel: 01252 810472
Email: contactus@marfan-association.org.uk
Category: Third/voluntary Sector