Description: Alstrom Syndrome UK provides support for those affected by Alstrom Syndrome, their carers and professionals working with them.
Email: via website
Category: Third/voluntary Sector
Provides support for those affected by Alström Syndrome
, their carer
s and professionals working with them. This includes a forum, help with gaining access to medical assessment
s with doctors who have expertise in Alström Syndrome, quarterly medical screening clinics and a newsletter.