Alstrom Syndrome UK

Description: Alstrom Syndrome UK provides support for those affected by Alstrom Syndrome, their carers and professionals working with them.

Weblink: http://www.alstrom.org.uk/

Email: via website

Category: Third/voluntary Sector


Services Provided

Alstrom syndrome support group - (Alstrom Syndrome UK)Service

Provides support for those affected by Alström Syndrome, their carers and professionals working with them. This includes a forum, help with gaining access to medical assessments with doctors who have expertise in Alström Syndrome, quarterly medical screening clinics and a newsletter.
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Benefits advice - (Alstrom Syndrome UK)Service

The organisation offers help and advice with educational, social and benefit problems to people affected by Alstrom syndrome.
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