UK Wolfram Syndrome Society

Description: A website set up and monitored by people affected by this rare genetic disorder. The aim is to raise awareness of this syndrome and provide a site where families can talk and find information that may be useful.

Weblink: http://www.wolframsyndrome.co.uk

Email: families@wolframsyndrome.co.uk

Category: Third/voluntary Sector


Services Provided

UK Wolfram Syndrome support group - (UK Wolfram Syndrome Society)Service

An on-line forum providing information and support to families affected by the condition. Some information is also available to download.
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