Description: The group's aim is to create a positive, supportive network of individuals, parents, families and professionals to share ideas, experiences, information and give vital support. The group is run by individuals with CHARGE Syndrome, parents and grandparents as well as professionals with a particular interest in the condition. We work on an entirely voluntary basis and membership is free. New members are always welcome.
Tel: 020 8265 3604
Category: Third/voluntary Sector