Retina UK

Description: Retina UK is the national charity for families living with inherited retinal dystrophies. They fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. They support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.


Tel: 01280 821334


Category: Third/voluntary Sector

Services Provided

UK Care Pathway for RP - (Retina UK)Service

An on-line resource giving information about the care of retinitis pigmentosa. There are sections for patients, parents, family & friends, teachers, employers and health professionals.
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Retina UK Helpline - (Retina UK)Service

RP helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.
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Retina UK Talk and Support - (Retina UK)Service

For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.
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South Wales Retina UK Peer Support Group - (Retina UK)Service

Retina UK volunteers run a number of Local Groups in towns across the UK. These enable people with RP to socialise and support each other as well as raise funds and run events on our behalf.
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