Description: Retina UK is the national charity for families living with inherited retinal dystrophies. They fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. They support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.
Weblink: https://retinauk.org.uk/
Tel: 01280 821334
Email: services@retinauk.org.uk
Category: Third/voluntary Sector
Services Provided
An on-line resource giving information about the care of
retinitis pigmentosa. There are sections for patients, parents, family & friends, teachers, employers and health professionals.
RP helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with
daily living.
For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.
Retina UK volunteers run a number of Local Groups in towns across the UK. These enable people with
RP to socialise and support each other as well as raise funds and run events on our behalf.
