Usher syndrome

Definition: Form of deafblindness where people are born deaf or hard of hearing and start to lose their sight (with retinitis pigmentosa) in the school years.

Category: Eye Condition

Credit: Sense


Services specifically catering for people with Usher syndrome

Social Groups - (Deafblind UK)Service

Deafblind Cymru's peer support & social groups provide those with both sight and hearing impairments plus their carers an opportunity to meet people and make friends. At regular meetings, all members are encouraged to get involved in the decision making process to determine what activities the group should do, often including social outings and arranging meetings to enjoy guest speakers on subjects of interest.
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Deafblind UK Information and advice - (Deafblind UK)Service

Whether you have lived with sight and hearing loss for a while or it is new to you, Deafblindness can be difficult to understand. The information at this site will help you to understand deafblindness and how to make the most of life with sight and hearing loss.
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Deafblind UK Befriending service - (Deafblind UK)Service

Our befrienders are here to talk, laugh and build lasting friendships with. Living with deafblindness can be lonely and you might find yourself feeling increasingly isolated. That’s why we offer a free befriending service where you can have some regular company from a friendly volunteer, either by phone, text message or email.
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Deafblind UK - Conwy Group - (Deafblind UK)Service

Meets on the last Friday of the month from 11 am to 1 pm at the Ambassador Hotel, Llandudno.
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Sight Life Dual Sensory Support Group - (Sight Life)Service

The club meets at Jones Court, Womanby Street, Cardiff on the 3rd Friday of every month fron 10.30am - 12.30pm. Anyone with a sight and hearing impairment are welcome. Volunteers will be on hand to assist if need be.
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Deafblind support - (Sense Cymru)Service

Specialist one-to-one support for deafblind people through both communicator guides and intervenors, and outreach support to children, families and deafblind adults in their own homes
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Sense Usher Service - (Sense UK)Service

The Sense Usher Service specialises in the field of Usher syndrome and supports people with Usher, their families and professionals. Support covers advice, assessments, training, mentoring and professional support.
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