Definition: An inherited genetic condition. Effects can include viual impairment caised by rod-cone dystrophy, often diagnosed as retinitis pigmentosa.
Category: Eye Condition
Credit: LMBBS
Source: http://www.lmbbs.org.uk/LMBBS/file/publications.php
Services specifically catering for people with Laurence-Moon-Bardet-Biedel (LMBB)
BBS support - (Bardet-Biedl Syndrome UK)Service
BBSUK can help by putting you in touch with other families who are facing similar problems, by passing on
advice which has helped others in the day to day management of thieir
children, and by sending information which will help professionals in
medical and educational fields to understand more about our special children.
The website has some information regarding benefits for people with Bardet-Biedl Syndrome.
