Definition: Best's disease, also known as Best's vitelliform macular dystrophy, is a hereditary form of progressive macular dystrophy first identified in 1905.
Category: Eye Condition
Credit: RNIB
Source: http://www.rnib.org.uk/eyehealth/eyeconditions/conditionsac/Pages/bests_disease.aspx
Services specifically catering for people with Best's disease
Skype groups give members the opportunity to talk to others affected by
macular disease, without leaving home. People of all ages can take part in video or voice only calls.
The
Macular Society has local self-help
support groups across the UK. The groups vary in size and style but all offer invaluable practical and emotional support to people with macular disease from people with macular disease.
Being diagnosed with
macular disease can leave you and your family feeling isolated and uncertain about the future. But, there is no need to face macular disease alone; the Macular Society specialist
helpline team provide free information, guidance and
advice to anyone affected by central vision loss whether it's you, a friend or a family member.
Befriending - (Macular Society)Service
The
Macular Society's befrienders make regular calls and enjoy chatting. You choose what you want to talk about - it could be about macular disease, your favourite hobbies or TV programmes, or just the weather! Particularly suitable for people unable to join a
support group. The Society aims to find you a befriender who is local and shares your interests, experiences or type of macular disease.
The
Macular Society can put you in touch with a Treatment Buddy who has already had treatment, for information and reassurance. If you are experiencing visual hallucinations (
Charles Bonnet Syndrome) due to sight loss there is a buddy service where you can talk to someone who has also experienced visual hallucinations for information and reassurance.
