Definition: Best's disease, also known as Best's vitelliform macular dystrophy, is a hereditary form of progressive macular dystrophy first identified in 1905.
Category: Eye Condition
Credit: RNIB
Source: http://www.rnib.org.uk/eyehealth/eyeconditions/conditionsac/Pages/bests_disease.aspx
Services specifically catering for people with Best's disease
Being diagnosed with
macular disease can leave you and your family feeling isolated and uncertain about the future. But, there is no need to face macular disease alone; the Macular Society specialist
helpline team provide free information, guidance and
advice to anyone affected by central vision loss whether it's you, a friend or a family member.
It is not unusual for some people with
macular disease to feel isolated, especially if it's difficult to get out and about. However, there is no need to feel alone - MS telephone befrienders can provide a regular friendly phone call, which may help to rebuild confidence and independence. Their telephone
befriending service may be especially helpful if you cannot get to one of their
support group meetings, but would like to talk to someone who has experience of macular disease.
The
Macular Society can put you in touch with a Treatment Buddy who has already had treatment, for information and reassurance. If you are experiencing visual hallucinations (
Charles Bonnet Syndrome) due to sight loss there is a buddy service where you can talk to someone who has also experienced visual hallucinations for information and reassurance.
The
Macular Society has local self-help
support groups across the UK. The groups vary in size and style but all offer invaluable practical and emotional support to people with macular disease from people with macular disease. Click the link below and enter your postcode to find the group near you.
