Description: BBSUK can help by putting you in touch with other families who are facing similar problems, by passing on advice which has helped others in the day to day management of thieir children, and by sending information which will help professionals in medical and educational fields to understand more about our special children.
Cost: There is no membership fee.
Telephone: 07510 384242
Type: Support Group
Provider: Bardet-Biedl Syndrome UK